Autism Awareness Should Be About Action Not Reaction


 

 

Autism Awareness month is upon us. What is awareness all about? I will start by posting a definition of awareness that I have mentioned in another post as well.
According to the Merriam Webster Encyclopedia, awareness means: “knowing that something (such as a situation, condition, or problem) exists”
Knowing that something exists, is not quite the same as fully supporting the issue. An example would be that we may see a homeless individual on the street and feel some empathy for there dilemma. This is an example of awareness of a situation. An individual may express concern for the homeless person’s situation, yet walk by them and go about their day. Rather then walking away, the individual who acts upon their concern and offers the individual a cup of coffee, etc. has learned from their level of awareness and used their knowledge to take action.
This said, I will not focus on whether an individual wears the color blue, which I am aware many individuals connect with Autism Speaks and present negative connotations towards this group. I do not care if an individual is wearing blue, orange, gold, or polka dots for that matter.

We may be surprised and find that the meaning of wearing blue for one individual during autism awareness month may not fit ones preconceived notions. I attempt to look beyond the colors and witness the individual’s actions and character as first and formost.

In not doing so, I would be presenting myself in a judgmental fashion akin with grouping African Americans, Asians, Caucasians, Indians, etc. into a preconceived belief system. Example in point: All Asians are not smart, all Indians are not rich because of casinos, all African Americans do not play basketball, and all Caucasians are not money hungry baseball lovers. I would be acting in an archaic manner and stepping back into another century where prejudice ran rampant in harboring these notions.

In the same fashion that “if we have worked with one autistic individual, we
have worked with all autistic individuals” This is a phrase that I personally abhor as there is a reason it is called the autistic spectrum. It is called a spectrum because there are are many different degrees of autism. This ideology is an example of a preconceived notion as well.  Individuals on the autistic spectrum present with varied personalities and needs, just like typically developing individuals do.

To take the idea of preconceived notions a bit further. One may assume a color is symbolic for a group or belief. For another individual, that color may symbolize something totally different. I will continue to favor the color blue because it is symbolic of something very different in my eyes.
For me, the color blue symbolizes promise. As I peer into the sky I see spring approaching after a gray dismal winter. I see a beautiful blue horizon that has taken on a distinctly sharper more vivid hue then was evident in the winter sky. While peering at the Spring sky, I see promise of green grass coming back to life, the return of birds tweeting outside my window.

In conjunction with autism, I connect the blue horizon that extends for miles into the atmosphere and over the ocean with realization that the autistic spectrum knows no boundaries. As the horizon is spread across the whole world in areas where our eyes cannot peer, the autism spectrum holds secrets that we cannot see. It holds the secret to individuals futures that we cannot see.

We do not have a crystal ball. i.e. a child that was not supposed to speak, ends up doing so, a child who’s parents were told to institutionalize them suddenly gains an awareness of their surroundings that no one expected, the child who was not supposed to toilet or self feed independently miraculously does so. As the horizon connects us all together although we are not aware of the activity on the other side of the world, our children have a future path that we are not aware of.

As you can see, blue possesses a different meaning for me then it does for someone else. Lets get to know each other before making judgments. Focus on the advantages of autism awareness month. Breed awareness through your actions not preconceived notions. A color will not change the world but making a difference will. Help a family who is overtired from caring for children on the autism spectrum. Help the family do chores, watch their special needs child so they can get a few hours of uninterrupted rest or enjoy a cup of coffee alone at a restaurant.

Help an adult on the spectrum who cannot drive by giving him a ride to work or elsewhere. Offer to help him or her compose a letter if they struggle with writing skills. Teach a parent support class, offer to teach life skills for free to transitioning young adults. These are mere examples of focusing on not only awareness but acceptance and education for the autism spectrum as well.

Last but not least, do not stop with only making contributions during autism awareness month. Continue helping society to become accepting and a place where all on the spectrum can live, work, love and play 12 months of the year. For families and individuals affected by autism, autism awareness is a 24 – 7 life for them.

The blue lights in the Empire State building, the rivers tinted blue, (or gold or purple for that matter) will dissipate and soon be a memory. Your efforts within the autism community will make a lasting impact however. Parents and individuals affected by autism will still be living with it after April is nothing but a mere memory. As families and individuals live with autism seven days a week, let’s make a pact to stay action oriented seven days a week as well. Keep your focus on the goal. When there is no more blue what will you do?

Thank you and let’s start advocating.

I am a published author and focus on books pertaining to autism and Aspergers Syndrome. I have had special needs articles published in several magazines. I have been interviewed several times in print, on pod casts, and internet T.V. regarding the autism spectrum. I have presented autism workshops to staff, management teams, and parent groups. I offer tips on curriculum development and behavior modification within the classroom and through in-services. I am certified by the Department of Early Childhood Education as a lead preschool teacher, an infant and toddler teacher, and site coordinator qualified to manage school age programs. I have recently ventured into public speaking engagements to educate both parents and educators on autism and Aspergers Syndrome
I want my experiences and challenges to be used productively as a learning tool for other parents and for educators as well. When my son was diagnosed with Asperger’s a decade ago it was a foreign word among many parents and professionals alike. I fought for help never giving up. Through my books I wish to help parents feel like they do not walk in the dark, that they are not alone, empower them and that there is light at the end of the tunnel. I also want to educate society at large on the topic of the autism spectrum. I believe all parties involved need to work as a collaborative team in order to insure a special needs child’s success.If you like my articles, aside from being the parent of an adult with Aspergers Syndrome/ A.D.D and an educational professional, I am also a published author of many special needs and autism related books written to inspire and support parents, families, educators and society at large as well. Please stop by and check out my books on Amazon.com at Mari Nosal : Please stop by my site at Amazon Books and check out my published books on autism aspergers special needs and more http://tinyurl.com/kdspqy9

Mari Nosal M.Ed. CECE

 

 

 

 

Advertisements

4 thoughts on “Autism Awareness Should Be About Action Not Reaction”

  1. This is an excellent piece. I am group leader of the King’s Lynn Asperger Support Society (KLASS), a support group for adults in the King’s Lynn and West Norfolk area who have Asperger’s Syndrome, and also run a blog (aspiblog.wordpress.com) and a twitter account (@aspitweets) and a such I hugely appreciate reading pieces like this one.

  2. I am very happy to read this paper and congratulate you for your research and approach to the problem. I am making a small contribution to raise awareness of people suffering from autism to mainstream them in the process of protecting themselves in disasters and other disruptions where they are most vulnerable. India has a large number of people with autism and there is little awareness and knowledge amongst parents, teachers and the community. We at Saritsa Foundation have educated and train 9950 persons with disability where people with autism are inclusive part of the initiative. I look forward for net working and partnership to take this cause forward in INDIA and internationally. I am Director General of Saritsa Foundation- A Mobile University for Disaster Risk Reduction and climate change. Email- saritsa@vsnl.net web http://www.saritsafoundation.org (only on mozila fire fox ) With regards Colonel Nagar M Verma

    1. Hello Colonel Nagar M Verma,

      Upon reading your comment I wanted to thank you . Your pledge to step forward and assist people on the autism spectrum in India is not only a gesture of kindness, but of altruism as well. Your work within your own foundation and assistance to special needs individuals across the world emphasizes the fact that all individuals in the world are only separated by metaphorical walls that people put up . As noted by your comments, people can replace walls of indifference with bridges that connect and help mankind.

      Your words and pledge to help others have given my efforts to advocate and my belief that through writing I can make a dent in the ultimate goal of unity and acceptance throughout the world. I believe the pen truly IS mightier then the sword and mankind can make a difference within society if we all do our part. If we ALL make a (dent) to support a cause, then combined each dent becomes a crater. There is power in numbers and no I in the word we. Thanks for doing your part to make the world a better place for those on the spectrum to live, love, work, and play.

      Best regards, Mari Nosal M.Ed. CECE

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s